MEGAN'S PERSONAL STORY

October 12, 2016 Upper GI Disorders, Cyclic Vomiting Syndrome, Gastroesophageal Reflux Disease

Hello, I am an 18 year old female who has been experiencing gastrointestinal disorder like sysmptoms for almost a year now, and am still on my journey to finding both answers and solutions.


Throughout the beginning of 2016, I experienced waves of overwhelming nausea, a dull achy pain in the pit of my stomach and an extreme dislike for food once or twice a month, lasting usually for a day or two. Not thinking much of it, and being told it was simply heartburn, I never seen a doctor. 


Nearing the end of August, as my first year of university was approaching, my symptoms started to worsen, I'm assuming because of stress. Since then, every morning I wake up around 4:30 (about half an hour before my alarm) with a pretty moderate uneasy and dull achy feeling just below my sternum in my upper abdomen. Along with it comes extreme nausea and throwing up of a clear, yet frothy and bubbly mucusy mess. Although there is not much throw up, the uncomfort before and during the episodes are accompanied by dry heaving and coughing, causing mucus to collect in my mouth resulting in lots of spitting.


I have been seeing doctors since the beginning of September, have had two blood and urine tests, a urea breath test to check for h. pylori, a complete ultrasound of my abdomen and have been on Pantaloc. All of my tests have come back negative, which is both relieving and frustraing, and after a month on the Pantaloc I have seen little to no improvements on my symptoms. 


My story here is to hopefully find some answers from fellow sufferers and possible solutions or remedies to help cope with this. Not knowing exactly what is causing this pain, and having to deal with it every morning with no answers is extremely frustrating and depressing. I can no longer eat the foods I love, like chocolate, spicy foods and fruits because they worsen my morning symptoms and I feel like my symptoms control my life and my happiness. 


I have had much trouble eating and being optimistic and happy about life because I feel so hopeless and helpless sometimes. My mornings are always dreaded and involved intense and desperate cries for relief and answers before leaving for school. I just need answers, a solution, a friend who understands, or a deep deep hole to suffer in away from outside responsibility and human interaction. 

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COMMENTS (2)

October 24, 2016 23:37 — Mary

I have no solutions for you, Megan, but I do understand and can relate and empathize with you. My story is similar in some ways. Though my medical team is still in the process of ordering a gazillion tests, leaving me with no answers to why the vomiting I have comes out of the blue & lands me in the hospital, I do have a question for you. I was just in again last week from Friday morning to Saturday night. Do you have a lot of gas? I just wonder because one of the things I did figure out on my own was I have a lactose intolerence that I'd never had before. I got to where I had gas 24/7 with no relief. On my own I stopped eating things with lactose. Now I don't eat ice cream, only eat aged cheeses and drink lactose free milk. It didn't solve my mystery, only helped a small portion of it.

November 23, 2016 00:24 — patrick

my doctor told me eating cheese was like pouring glue into my colon