I am not sure this qualifies for this site but here goes. I am writing on behalf of my young adult daughter. She has NF1 (Neurofibromatosis Type 1), and Plexiform Neurofibromas were recently discovered in 2 sections of her small intestines. They have invaded her intestinal walls. This has affected function and has resulted in malabsorption and iron deficient anemia. We have a Hematologist, Neur

Hello, I am an 18 year old female who has been experiencing gastrointestinal disorder like sysmptoms for almost a year now, and am still on my journey to finding both answers and solutions.

Throughout the beginning of 2016, I experienced waves of overwhelming nausea, a dull achy pain in the pit of my stomach and an extreme dislike for food once or twice a month, lasting usually fo

I am 13 years old and i have been dealing with severe, chronic constipation my entire life. My constipation was pretty bad when I was younger, considering I was young and didn't really know what was going on with me. By the time I was 10 or 11 years old, my constipation seemed to being gettting better, or at least I thought. In March of 2016, my 7th grade year, I started experiencing nausea. It

Hi everyone, my name is Jorge and I currently live in north Georgia. About a week ago during one of my frustrations, I stumbled upon this website. And I am just astonished at the story's and even though I know that GI problems are very occurrent in a lot of people's lives, reading these story's I can see very vivid images of what al of you are going through. The reason that I ended up here is b

God bless you for this site.Sharing with ppl who UNDERSTAND helps! @62, I was dx with very invasive breast cancer.Since I had such fierce cancer, I was given LOTS of VERY strong chemo. One is KNOWN to ruin heart function.But the one that brought me here was one made of bark of a literally poisonous tree.THAT one, poisonous in toto, caused the oncologists to give out Imodium like M&Ms in the

I just put IBS because that's what I think I have, i'm not actually sure what I have at the moment. I am a 19 year old girl, I've had diarrhea daily, sometimes multiple times in a day, for about 2 months straight, everyday. At first, for about a year or so, I had stomach issues, where i'd get gas regularly, I had bowel issues, my stomach would rumble loudly when I held gas in, and holding gas i

I was a young, fun, athletic 37 year old, relatively healthy, living in the heart of Chicago, with an amazing job and awesome social network, when my weight started to suddenly plummet...and rapidly. Test after test, revealed nothing except a clinically deficiently low level of vitamin B12. The lab variances ranged from 211 to 947. I was at 75 and having symptoms of neuropathy.  My weight

I am a 43 year old male,  been suffering from ibs  for last 10 years.  I was managing it with exercise and diet control upto last year.  But last year I developed ankle pain which was diagnosed as sinus tarsi syndrome which didn't go with medication hence took a corticosteroids injection.  Since then ankle pain disappeared but started with headaches.  So doctor pre

I am a 43 year old male,  been suffering from ibs  for last 10 years.  I was managing it with exercise and diet control upto last year.  But last year I developed ankle pain which was diagnosed as sinus tarsi syndrome which didn't go with medication hence took a corticosteroids injection.  Since then ankle pain disappeared but started with headaches.  So doctor pre

7 years ago I had surgery to fix a hiatus hernia. Straight away I was unwell and within 3 months I went back to the surgeon complaining of problems with my bowel. I was told it was because I was still recovering from my operation. the next 5 years were the worst years of my life. I was always sick either vomiting or being on the toilet up to 20 times a day, for days at a time with an overactive

My five year old son Weston has struggled with gastrointestinal symptoms since he was born in 2010. These symptoms began as vomiting, diarrhea, failure to thrive, malabsorption syndrome, and acid reflux

I have post infections ibs (diarrhea) since 2004. My pain and symptoms improve on 2006 due to amitriptyline (50mg a day), a tricyclic antidepressant. My conditions get worse about a year ago. I think amitriptyline was not working anymore. My doctor prescribed antibiotic to reduce gas problems and it work, but I still had to

Thank you to all brave sufferers of faecal incontinence who have shared their story. I am an author - not a very famous one, but a published one - and I am a nurse, as well as a sufferer of FI since giving birth 24 years ago. One day I would like to seek everyone's permission and write stories. I want the world to know what we go  through because why should we feel guilty, dirty and live w

I have had abdominal pain on and off for 4 years.  Since January 2016 the pain has been constant, it gets worse anytime I eat or drink anything, I have lost about 30 pouns since January.  Last December I had a Colonoscopy and in February I had an endoscopy and both cam out normal, March of 2015 I had a hysterectomy because they though this pain was caused by endometriosis, found that

I am 47 years old.  I have had IBS-since I was in about 17 years old.  I almost got suspended from school one year for being late to class too many times.  Up until about a year ago I had IBS-D, and almost overnight it changed to IBS-C.  I am so miserable I could die sometimes.  I am taking Linzess, and it doesn't work very well.  Sometimes I wait until the weekend

How do you tell the story of how your life fell apart? You went to the doctor thinking you just had some weird stomach illness but medicine and the doctor would make it better. In the fall of 2015 I had the worst seasonal allergies I had ever had. It turned into something that felt like a chest cold. I was having trouble breathing, so I went to a walk-in clinic. The doctor diagnoses me with bro

My Sphincter of Oddi Dysfunction Story

I went undiagnosed with Sphincter of Oddi Dysfunction (SOD) for 14 years…

Hello to everybody. I bumped into this website in one of the several moments of discomfort of my life. I was born with myelomeningocele, spina bifida, so I've been dealing with fecal incontinence my entire life.

48 yrs old & @ work when I had my 1st attack, I couldn't leave the stall. Someone came in & got my mgr. She freaked when I told her I couldn't finish the day. It had already been 2 hours, and I had lost track of time. Pain 10 out of 10, chills, sweat, lasted 8 hrs! No warning. Next attack 1 yr