Never thought I would see the day that I would be writing on Google about my dis-motility disorders. Well here goes, I have sooo many dis-orders, that the Cleveland Clinic and Mayo Clinic have both told me there is nothing they can do for me, at the age of 50, am now 55.I now am on TPN, probably for the rest of my life, because when I eat, it stays in my stomach and intestines and ROT'S and I then
I had just finished the electronics technician school for submarines in Groton,CT when I was diagnosed with diabetes. Not wanting to lose another submariner, especially a freshly trained one the doctor convinced me to stay in the Navy. I was in prime shape, running 10 miles a day and the doc told me if I keep working out, I had nothing to worry about and no further treatment was needed. Unfortunat
In my early 40s I had episodes of stunning "gas pains" in my lower left gut which I later realized were episodes of diverticulitis. I also began to develop a tendency toward constipation, but never due to hard, dry stools. I also had a very serious lactose intolerance since childhood. The smallest amount of milk or yogurt in some sauce or other would leave me doubled over in pain.
I am 29 years old and have been suffering IBS-D (sometimes C) since I was possibly 15 years old. I was officially diagnosed by my GI about 3 and a half years ago. Its good to know what it is, but sadly so devastating there is not alot that can be done. I useto have specific symptoms that would indicate a flare up, but as time goes on I find symptoms changing yearly. Right now I suffer from sharp p
I'm a 29 almost 30 yr old female. I've been suffering from IBS-C since my mid teens, and it has become progressively worse since then. My symptoms aren't consistant. I go through phases where my pain and other symptoms it's unbearable, to times where it's tolerable.
The worst symptom of all is the terrible abdominal bloating/cramping. (I look like 6mos+ pregnant) I can't wear any clothing t
I was always able to eat anything I wanted without gaining any weight. I was and still am very athletic and in shape. I am only 16 years old and got diagnosed with gastroparesis April of 2014. My symptoms began in January, and I was tested for many different types of bacterial infections but every result was normal. My everyday symptoms were dizziness, nausea, headache, abdominal pain, weight loss
I believe I have IBS. I have weird sounding gas followed by a bowel movement. I do this whether I eat or not. It's worse if I eat. I will go about 10 times without food. I'll have to go about 15 times if I eat. I generally go about 20 to 25 times a day. I can't even sit down without having to go. I know I have bad stomach problems. No one should have to move their bowels this much. It seems like I
Several years ago I began having episodes of fecal incontinence at night while asleep. Sometimes every few months or multiple times a week. I chalked it up to the frequent diarrhea I had been having since my gastric bypass in 2002. Then I began having minor spotting accidents during the day. I began taking extra clothes to work just in case and lived in fear of a "big one at work" I couldn't hide.
Okay truly I don't know what I have aside from chronic constipation but there is a question mark in my medical notes for Hirschsprung's which is what i believe i may have.
I am writing because i am a bit down about my condition at the moment.
My childhood was affected by it... i grew up believing there was something wrong with me, not like i had a medical condition, but that i was ju
I have always struggled with my weight, my doctor would constantly ask my parents if I showed any signs of anorexia, people would compliment me on how flat my stomach was or how skinny I was, but little did they know what I was dealing with on the inside. I was always able to eat anything I wanted without gaining any weight.I was hospitalized 8 times in the year leading up to my first year of high
In early February 2014, I spent a week in the hospital and was eventually diagnosed with gastroparesis. My life changed in ways I could not have imagined – overnight. One day, I was able to eat at buffets, if I so desired, and the next day, I was unable to tolerate all foods and liquids. I was hospitalized with severe pain and vomiting, put through a battery of tests (including one partic
Gastroparesis the beginning. I believe my journey began in 1989 with the first migraine, but I didn't realize it. The first migraine I had was a reaction to Indocin. I thought, at the time! And it may very well have been! What you also need to know? Is that I was an avid exerciser, biker, jogger, and really worked at being healthy. Always had sinus and constipation issues but did my best to get
I have been suffering from what the doctors diagnosed as IBS for as long as I can remember. I can go for an extended period of time with just simple minor discomforts and live a "normal" life. But when I have what I call a flare, it's like my life stops. I go through periods where it hurts to even think about eating and the nausea feels like it eats me alive. During this time I have been known to
My story begins and ends with a plea to lawmakers. Our Declaration of Independence lists our "inalienable rights" of "life, liberty and the pursuit of happiness". I ask you to give me and my fellow sufferers with gastroparesis those rights. There are numerous medications and treatments for gastroparesis in other countries that have not been allowed in the USA. These are approved by the World He
I was officially diagnosed with Gastroparesis in March of 2014. However, my doctors feel that I have been suffering with it for much longer. In 2007 following a surgical biopsy I was diagnosed with Reflux. I had started experiencing classic reflux symptoms with heart burn and a lump sensation in my throat. The piece that didn't fit was constant and random regurgitation of undigested food. I starte
I thought my life couldn't possibly get any worse. Yes, I have an amazing husband and three awesome kids ranging from age 13-22.
Sometime around February of 2014 I was called to come into my doctors office immediately. He walked in the room and had two boxes in his one hand. I shook my head, "No No No" as he said "Yes Yes Yes". My blood sugar was way of the grid. I was close to kidney failu
In 2010 I gave birth to my first son and suffered a 4th degree tear- as a result of a vacuum delivery and episiotomy. Soon after I started having issues with continence but didn't really connect the dots. After a year or so of realizing that something wasn't right, I had a GI doc do a rectal exam and discovered that most of my sphincter muscle was missing. I was referred to a colo-rectal surgeon a
Hello; I am a 69 year old woman who when I was just 18 years old I had a Duodenal Ulcer. The doctors did not know then that a Duodenal Ulcer could be caused by bacteria. My ulcer was. It was caused by H-Pylori. Never knew until 15 years ago. They found it anti-bodies in my blood and for some reason they put me on a two week horrible treatment. Months later they tested my blood once again and saw a
I have had IBS symptoms since a child, or young teenager. I first noticed symptoms (immediate diarrhea) on the first day of a new school, or moving from elementary to middle and from middle to highschool, taking my driving test etc. These were high stress situations for me. During my high school years, anytime I would sneak out or lie to my parents diarrhea would come on immediately. I thought it
This information is in no way intended to replace the guidance of your doctor.
We advise seeing a physician
whenever a health problem arises requiring an expert’s care.
© Copyright 1998-2020 International Foundation for Gastrointestinal Disorders, Inc. (IFFGD). All Rights Reserved.
IFFGD gratefully acknowledges the following members of our Industry Council.