ANONYMOUS'S PERSONAL STORY

February 11, 2016 Gastroparesis
Country : USA Satate : West Virginia 

Hello, my name is Cathryn. I am 17 years old. I have gastroparesis and have had it for a long time now. My case is very severe and I also have chronic GERD too. Yet, I am not diabetic oor borderline. Gastroparesis has caused many delays and harsh outcomes in my young life. They do not know why I have this, I overall try to be positive about it, although, it is extremely hard. My mom tells me all the time it isn't my fault.. it's true, but hard to face the fact that I will have this forever. I am a senior in high school and it is so hard for me to wake up and go, I go even during my attacks, my teachers know and understand but are still very uneasy to the thought of it. No one else in my family has this, I am the only one.. so when people say they understand I get they're trying to help and comfort me, yet, they'll never be able to get it. I used to cheerlead and dance from 4-14 which is when I began getting horribly sick, yet, I began getting ill when I was 12, trust me though, every day I wake up worried about what to eat, drink, or if I should even bother to try. It doesn't only affect me, it does to all my loved ones. I just hope one day no one will ever have to deal with this again. We need a cure, gastroparesis and gastrointestinal disorders impacts everyday life! I know where I have it. But, to all the people whom have this disorder and is reading this, keep your head high, I know how it feels, you may not be cured, but it doesn't mean it will control your life.

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COMMENTS (1)

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July 18, 2016 07:11 — Paige Mitchell

July 18, 2016 07:06 — Paige Mitchell Hi I am sorry to hear everything you are going thru. My daughter Paige is 16 at age 13 she had a thoracic arachnoid cyst on her spine went from t1 to t 12 after surgery was paralyzed for awhile at age,15 had to have rods fused in her spine to keep her,from falling over which they say are causeing stomach issues now. They say functional abdominal pain maybe gastroparesis they said,why emptied her stomach of food and did botox injections she cannot eat much feels sick and stomach pain. Does not feel hungry she is down to 94 lbs. They said no more test to run and want her to go to a pain management we are so frustrated any suggestions for us or anyone to talk to. Any help is appreciated. I'm guessing if you reply back, it will go to my email.