Copy of Advocacy Day 2020 1

 

Virtual Advocacy Event

Be Active

Be Heard.

Make a Difference.

 

JULY 26-27, 2020

For the millions of Americans living with the debilitating and sometimes life-threatening symptoms of a functional gastrointestinal or motility disorder (FGIMD), the fight for awareness, research into safe and effective treatments, and cures are ongoing.

But Members of Congress can help

IFFGD's Virtual Advocacy Event will be a two-day event educating and empowering advocates from across the nation — patients, family members and friends, and health care providers. This is an opportunity to learn how patients and caregivers can engage with Federal agencies to help shape research, drug development, and approval; share personal stories of how you have been impacted by an FGIMD; and educate key policymakers in Washington about the needs of the millions of Americans affected.

Together, we can make the voice of the digestive health community heard and encourage Congress to prioritize actions that will lead to greater awareness and the development of new treatment options and cures. 

An online Advocacy Training Program will be held on Sunday, July 26th.

Monday, July 27th will be a day dedicated to advocating Congress.

 

Register here today!

 

 

About IFFGD's 2020 National Advocacy Event

Whether you are living with an FGIMD or you know someone who is, you understand the true impact of these conditions on those affected and the need for greater research funding for treatments and cures. IFFGD's Virtual Advocacy Event is an opportunity for you to share this impact with your elected officials and advocate alongside others just like you. Please email This email address is being protected from spambots. You need JavaScript enabled to view it. if you have any questions.

Sunday, July 26th

This educational portion of the Advocacy event will feature talks given by representatives of government agencies, healthcare professionals, and IFFGD staff. This full-day educational program will begin at 9 a.m. EST, with scheduled breaks throughout the day.

Topics include:

  • The National Institutes of Health (NIH), including research in Neurogastroenterology
  • The Food and Drug Administration's (FDA) Patient Engagement team
  • The lifecycle and marketing of a drug
  • Advocating for yourself in healthcare
    • What to do when health coverage is denied
    • What to bring to a doctor appointment
    • Preparing for your appointment to best address your goals
    • What to ask your healthcare provider before leaving an appointment, and what they wish you would ask
    • Managing online healthcare and making the most of telehealth visits
    • How to describe your pain in a way that your provider can best understand
  • Creating an effective healthcare team and how best to include a:
    • surgeon,
    • dietitian,
    • and psychologist or psychiatrist 
  • Complementary alternative medicine and GI illness
  • Supplements and GI disorders

 

 

Monday, July 27th

Join us by emailing or calling your legislators! Educational videos and all necessary materials will be provided to ensure you can make the most out of this day, and future days of advocating.

Topics include:

  • How to make the most of this Virtual Advocacy Event
  • Legislative priorities in Gastrointestinal Disorders
  • Tips to prepare for calling and emailing legislative offices
  • How a Bill becomes a law
  • How to best follow-up on your Advocacy Event Contacts
  • An overview of H.R. 3396
  • Advocating for the GI community and yourself at the state and national levels

 

 

 

 

Legislative Successes

IFFGD has long been a voice on the Hill. By educating key policymakers and regulators in Washington, we have been able to bolster National awareness and elevate the research portfolios for FGIMDs at the National Institutes of Health (NIH) and other Federally-funded research institutions.  

Learn more about our legislative successes. 

 

We thank you for your participation in Advocacy Day 2020 and look forward to future Advocacy Events!

Advocate for Change

capital hill day 2

What it means to be an advocate – someone who speaks out and works with others to create meaningful, positive change. Let your voice be heard.

Taking Action for Digestive Health

The Functional GI and Motility Disorders Research Enhancement Act

Make Your Voice Heard