Make a Difference.
JULY 26-27, 2020
For the millions of Americans living with the debilitating and sometimes life-threatening symptoms of a functional gastrointestinal or motility disorder (FGIMD), the fight for awareness, research into safe and effective treatments, and cures are ongoing.
But Members of Congress can help.
IFFGD's Virtual Advocacy Event will be a two-day event educating and empowering advocates from across the nation — patients, family members and friends, and health care providers. This is an opportunity to learn how patients and caregivers can engage with Federal agencies to help shape research, drug development, and approval; share personal stories of how you have been impacted by an FGIMD; and educate key policymakers in Washington about the needs of the millions of Americans affected.
Together, we can make the voice of the digestive health community heard and encourage Congress to prioritize actions that will lead to greater awareness and the development of new treatment options and cures.
An online Advocacy Training Program will be held on Sunday, July 26th.
Monday, July 27th will be a day dedicated to advocating Congress.
Sunday, July 26th
This educational portion of the Advocacy event will feature talks given by representatives of government agencies, healthcare professionals, and IFFGD staff. This full-day educational program will begin at 9 a.m. EST, with scheduled breaks throughout the day.
- The National Institutes of Health (NIH), including research in Neurogastroenterology
- The Food and Drug Administration's (FDA) Patient Engagement team
- The lifecycle and marketing of a drug
- Advocating for yourself in healthcare
- What to do when health coverage is denied
- What to bring to a doctor appointment
- Preparing for your appointment to best address your goals
- What to ask your healthcare provider before leaving an appointment, and what they wish you would ask
- Managing online healthcare and making the most of telehealth visits
- How to describe your pain in a way that your provider can best understand
- Creating an effective healthcare team and how best to include a:
- and psychologist or psychiatrist
- Complementary alternative medicine and GI illness
- Supplements and GI disorders
Monday, July 27th
Join us by emailing or calling your legislators! Educational videos and all necessary materials will be provided to ensure you can make the most out of this day, and future days of advocating.
- How to make the most of this Virtual Advocacy Event
- Legislative priorities in Gastrointestinal Disorders
- Tips to prepare for calling and emailing legislative offices
- How a Bill becomes a law
- How to best follow-up on your Advocacy Event Contacts
- An overview of H.R. 3396
- Advocating for the GI community and yourself at the state and national levels
IFFGD has long been a voice on the Hill. By educating key policymakers and regulators in Washington, we have been able to bolster National awareness and elevate the research portfolios for FGIMDs at the National Institutes of Health (NIH) and other Federally-funded research institutions.
We thank you for your participation in Advocacy Day 2020 and look forward to future Advocacy Events!