Karen’s Personal Story

Karen’s Personal Story: Gastroparesis & EDS im so sad as its hard for me to write long as I have awful EDS hands but I thought I had sent a long story about my suffering with gastroparesis not eaten for 6 months stomach and groin pain so bad iv bn rushed to hospital many times […]

JULIE’S PERSONAL STORY

Never thought I would see the day that I would be writing on Google about my dis-motility disorders. Well here goes, I have sooo many dis-orders, that the Cleveland Clinic and Mayo Clinic have both told me there is nothing they can do for me, at the age of 50, am now 55.I now am […]

KAREN’S PERSONAL STORY

Hi everyone was I pleased to find this page as I’m at my wits end iv even starting goin to church ( which is something iv never done before but I do believe in my angels) iv suffered badly with EDS and everything that goes with it and as a child with unkind cruel parents […]

April’s Personal Story

April’s Personal Story: Gastroparesis Hi My name is April!!! I am so excited to share my story! Omg first and foremost to everyone living with this God awful disease Gastroparesis I love you and I am praying for you constantly! Well I was diagnosed with diabetes when I was pregnant with my youngest son! Horrible […]

DEB’S PERSONAL STORY

Gastroparesis the beginning. I believe my journey began in 1989 with the first migraine, but I didn’t realize it. The first migraine I had was a reaction to Indocin. I thought, at the time! And it may very well have been! What you also need to know? Is that I was an avid exerciser, biker, […]

Bonnie’s Personal Story

Bonnie’s Personal Story: “make sure you have a doctor who understands how you feel” My name is Bonnie, I have been suffering from this stomach problem now for 2 years. I live on tpn feeding. Chronic vomiting and nausea 24 7. I had a stimulator put in oct. So far still the same. This gastroparesis […]

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