Event
Session ONE: Finding Help Through Support Groups on Facebook Session TWO: In-person and Online Support Groups Session THREE: Developing a Comprehensive Support System Session FOUR: Advocacy Education Session FIVE: Finding Support from Government Agencies Sunday, March 21st, 2021 Session ONE: Finding Help Through Support Groups on Facebook Many people have a difficult time finding a Facebook […]
News Article
IFFGD Raises Awareness of Rare Digestive Diseases for Rare Disease Day 2018 For Immediate Release Media Contact Formdocument.getElementById(‘cloak8b0435b9dc1adbc3431bf0d104a05999’).innerHTML = ”;var prefix = ‘ma’ + ‘il’ + ‘to’;var path = ‘hr’ + ‘ef’ + ‘=’;var addy8b0435b9dc1adbc3431bf0d104a05999 = ‘media’ + ‘@’;addy8b0435b9dc1adbc3431bf0d104a05999 = addy8b0435b9dc1adbc3431bf0d104a05999 + ‘iffgd’ + ‘.’ + ‘org?subject=Media%20Inquiry’;var addy_text8b0435b9dc1adbc3431bf0d104a05999 = ‘Media Contact Form’;document.getElementById(‘cloak8b0435b9dc1adbc3431bf0d104a05999’).innerHTML += ‘‘+addy_text8b0435b9dc1adbc3431bf0d104a05999+’‘; IFFGD […]
News Article
Health policies shape how treatments are developed and approved. At IFFGD, we work to ensure that the voices of those affected by gastrointestinal (GI) disorders are heard in important policy conversations. Through education, advocacy, and collaboration with decision-makers, we help the GI community understand current and emerging health policies, and how these changes impact research, […]
Disorder
What is CAPS? Centrally mediated abdominal pain syndrome (CAPS), formerly known as Functional abdominal pain syndrome (FAPS), is a condition of abdominal (belly) pain that is long-term or keeps coming back. The pain is not linked with changes in bowel pattern – constipation and/or diarrhea. It occurs because of abnormal functioning of nerve impulses in […]
Disorder
What is Cyclic Vomiting Syndrome? CVS is a chronic disease marked by severe, recurrent episodes of nausea and vomiting in a person who is otherwise healthy. CVS episodes often flip-flop with states of wellness. Vomiting may occur every 5-10 minutes for several hours during an episode. On average, CVS episodes last 3-7 days but vary […]
Disorder
Nearly everyone experiences unwanted digestive issues now and again. Sometimes these may be minor, other times they may be very disruptive. A number of symptoms that occur together may characterize irritable bowel syndrome (IBS), gastroesophageal reflux disease (GERD), or another functional GI disorder. Whether or not digestive symptoms arise from functional GI disorders, there may […]
Personal Story
Anonymous Personal Story with fecal incontinence: “DO NOT QUIT” Several years ago I began having episodes of fecal incontinence at night while asleep. Sometimes every few months or multiple times a week. I chalked it up to the frequent diarrhea I had been having since my gastric bypass in 2002. Then I began having minor […]
Personal Story
Hi everyone was I pleased to find this page as I’m at my wits end iv even starting goin to church ( which is something iv never done before but I do believe in my angels) iv suffered badly with EDS and everything that goes with it and as a child with unkind cruel parents […]
Testimony
The following written comments were submitted to the Dockets Management Staff (HFA-305) Food and Drug Administration by IFFGD President, Ceciel T. Rooker, in response to Docket No. FDA-2019-D-4247 on December 30, 2019. Thank you for your leadership at the Center for Drug Evaluation and Research in the Food and Drug Administration (FDA). The International Foundation for […]
Testimony
IFFGD Vice-President, William Norton, submitted the following written public testimony to the FDA in connection with a January 11, 2012 meeting of the Gastroenterology and Urology Devices Panel of the Medical Devices Advisory Committee to consider the premarket approval of the LINX Reflux Management System for the treatment of gastroesophageal reflux disease (GERD): On behalf […]
Testimony
IFFGD President, Ceciel Rooker, submitted the following written statement to the House and Senate Committee on Appropriations, Subcommittee on Labor, Health and Human Services, Education, and Related Agencies regarding Fiscal Year (FY) 2020 appropriations for medical research and public health programs. April 9, 2019 STATEMENT OF CECIEL T. ROOKER PRESIDENT INTERNATIONAL FOUNDATION FOR […]