At a Glance Hirschsprung’s disease is a rare condition that people are born with Symptoms usually appear in newborns, but may also appear in childhood or adulthood Diagnosis is usually made within the first few months or years of life Sometimes diagnosis is made in adulthood Tests confirm the diagnosis Treatment is surgical Some symptoms […]
DDH Chat
March 2021 DDHChat: Food Intolerance and Food Allergies IFFGD – introductory tweets and remarks: The views and experiences shared by our participant are their own and do not reflect the official positions of IFFGD. Each patient is different. Always consult with your health care provider or a registered dietitian (RD) on a diet treatment plan […]
Event
Session ONE: Finding Help Through Support Groups on Facebook Session TWO: In-person and Online Support Groups Session THREE: Developing a Comprehensive Support System Session FOUR: Advocacy Education Session FIVE: Finding Support from Government Agencies Sunday, March 21st, 2021 Session ONE: Finding Help Through Support Groups on Facebook Many people have a difficult time finding a Facebook […]
News Article
IFFGD Raises Awareness of Rare Digestive Diseases for Rare Disease Day 2018 For Immediate Release Media Contact Formdocument.getElementById(‘cloak8b0435b9dc1adbc3431bf0d104a05999’).innerHTML = ”;var prefix = ‘ma’ + ‘il’ + ‘to’;var path = ‘hr’ + ‘ef’ + ‘=’;var addy8b0435b9dc1adbc3431bf0d104a05999 = ‘media’ + ‘@’;addy8b0435b9dc1adbc3431bf0d104a05999 = addy8b0435b9dc1adbc3431bf0d104a05999 + ‘iffgd’ + ‘.’ + ‘org?subject=Media%20Inquiry’;var addy_text8b0435b9dc1adbc3431bf0d104a05999 = ‘Media Contact Form’;document.getElementById(‘cloak8b0435b9dc1adbc3431bf0d104a05999’).innerHTML += ‘‘+addy_text8b0435b9dc1adbc3431bf0d104a05999+’‘; IFFGD […]
News Article
Health policies shape how treatments are developed and approved. At IFFGD, we work to ensure that the voices of those affected by gastrointestinal (GI) disorders are heard in important policy conversations. Through education, advocacy, and collaboration with decision-makers, we help the GI community understand current and emerging health policies, and how these changes impact research, […]
Disorder
What is CAPS? Centrally mediated abdominal pain syndrome (CAPS), formerly known as Functional abdominal pain syndrome (FAPS), is a condition of abdominal (belly) pain that is long-term or keeps coming back. The pain is not linked with changes in bowel pattern – constipation and/or diarrhea. It occurs because of abnormal functioning of nerve impulses in […]
Disorder
What is Cyclic Vomiting Syndrome? CVS is a chronic disease marked by severe, recurrent episodes of nausea and vomiting in a person who is otherwise healthy. CVS episodes often flip-flop with states of wellness. Vomiting may occur every 5-10 minutes for several hours during an episode. On average, CVS episodes last 3-7 days but vary […]
Disorder
Nearly everyone experiences unwanted digestive issues now and again. Sometimes these may be minor, other times they may be very disruptive. A number of symptoms that occur together may characterize irritable bowel syndrome (IBS), gastroesophageal reflux disease (GERD), or another functional GI disorder. Whether or not digestive symptoms arise from functional GI disorders, there may […]
Personal Story
Anonymous Personal Story: A Lifetime Battle with Intestinal Obstructions and Pseudo-Obstruction I was born with my problems. Doctors wanted to give me a colostomy at birth. My parents said no. I had chronic pain always. Sometimes I could eat, and sometimes I couldn’t. I never had normal bowel movements. When I was able to go, […]
Personal Story
Michaelynn’s Personal Story: Battling Persistent Diarrhea, Weight Loss, and a Gastroparesis Diagnosis My issues started in 2009 and it all started with persistant diarrhea, indigestion, heart palpitations and nausea. I was working a full time job and struggled to make it through each day with the diarrhea. They prescribed every drug for reflux but they […]
Personal Story
Anonymous Personal Story with fecal incontinence: “DO NOT QUIT” Several years ago I began having episodes of fecal incontinence at night while asleep. Sometimes every few months or multiple times a week. I chalked it up to the frequent diarrhea I had been having since my gastric bypass in 2002. Then I began having minor […]