Raising awareness is critical to advance research and improve care for people affected by FGIMDs. The more we spread the word and talk openly about these conditions, the greater our ability to make connections with people who can benefit from our support and raise the funds needed to provide it. A higher profile can translate […]
Pseudo-Obstruction and Other Primary Motility Disorders – Pediatric Presented by Nikhil Thapar, MRCP, FRCPCH, FRACP, PhD Watch presentation here Presentation Overview Primary gastrointestinal motility disorders are a heterogeneous group of disorders that affect the neuromuscular (nerve and muscle) components of the gastrointestinal tract and limit its ability to push contents along the length of its […]
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Personal Story
Brenda’s Personal Story- Gastroparesis and Emetophobia I thought my life couldn’t possibly get any worse. Yes, I have an amazing husband and three awesome kids ranging from age 13-22.Sometime around February of 2014 I was called to come into my doctor’s office immediately. He walked in the room and had two boxes in his one […]
Personal Story
Brenda’s Personal Story- Gastroparesis and Emetophobia I thought my life couldn’t possibly get any worse. Yes, I have an amazing husband and three awesome kids ranging from age 13-22.Sometime around February of 2014 I was called to come into my doctor’s office immediately. He walked in the room and had two boxes in his one […]
Personal Story
Lindsay’s Personal Story- An Advocate’s Story DHA advocate Lindsay has made great strides to raise awareness and funds for gastroparesis. The first annual Go With Your Gut 5K was held in Hilliard, Ohio, on August 23rd of 2014. Lindsay crushed her $3,000 fundraising goal, bringing in more than $9,000 to benefit research into idiopathic gastroparesis […]
Physician Introduction on Short Bowel Syndrome (SBS) and Intestinal Failure Presented by Adam Stein, MD Dr. Adam Stein Watch presentation here Presentation Overview Physician Introduction on Short Bowel Syndrome and Intestinal FailureAdam C. Stein, MDNorthwestern Medicine Everyone needs to stay nourished and hydrated to survive. If we don’t get enough fluids or nutrition, eventually our […]
Personal Story
Cheer up folks!!! I read stories about people staying home all the time and scared to leave the house. I have had incontinence for over 10 years. I am now a 55 year old woman who wears diapers and has a wonderful life. I can go most anywhere and remain stealth about my diaper issues. […]
Personal Story
Never thought I would see the day that I would be writing on Google about my dis-motility disorders. Well here goes, I have sooo many dis-orders, that the Cleveland Clinic and Mayo Clinic have both told me there is nothing they can do for me, at the age of 50, am now 55.I now am […]
Over a decade ago, investigators noted that approximately half of the women attending a gynecology clinic had symptoms (e.g., abdominal pain, change in bowel pattern) compatible with a diagnosis of irritable bowel syndrome (IBS). What can be said about IBS in Women? Since that study, a number of other studies have demonstrated a higher prevalence […]
“Unexplained” Symptoms and “Functional” Disorders People usually go to healthcare providers with symptoms, not with the names of diseases or conditions (diagnoses). The healthcare provider’s task is to make sense of the patient’s complaints within the framework of medical diagnoses and recognized diseases such as IBS and other functional disorders. Your healthcare provider will begin […]
Working with Your Healthcare Provider- Irritable bowel syndrome (IBS) persists or recurs over time. A long-term relationship with a knowledgeable and empathetic healthcare provider or therapist can be very important. Ideally, your healthcare provider should: