For those living with congenital sucrase-isomaltase deficiency (CSID), access to needed medical therapies often comes at a high cost. To help alleviate some of the financial burden faced by affected individuals and their families, the HealthWell Foundation has launched a new fund that will provide up to $10,000 in copayment or premium assistance to eligible patients living with CSID.
CSID is a genetic digestive disorder that affect’s a person’s ability to digest certain sugars. Affected individuals cannot break down the sugars sucrose (also known as table sugar) and maltose (the sugar found in grains), and other compounds made from simple sugar molecules (carbohydrates), which can cause diarrhea, abdominal pain, and other symptoms.
“For children and adults living with CSID, accurate diagnosis is just the first step,” said IFFGD President Ceciel Rooker when asked about the fund. “Costs associated with this life-long digestive disorder pose a significant burden and can prevent individuals and families from obtaining the medical care they need. This fund from the HealthWell Foundation will help lift some of that burden and give families greater access to needed treatments.”
About the HealthWell Foundation
The HealthWell Foundation is an independent non-profit organization with the mission of reducing financial barriers to medical care for underinsured patients with chronic or life-altering diseases.