2015 UPDATE: THIS BILL HAS BEEN REINTRODUCED IN THE CURRENT CONGRESS UNDER NUMBER H.R. 2311.

FGIMDs affect individuals of all ages, including children, and these conditions can range in severity from discomforting to life-changing or life-threatening. Most FGIMDs are chronic and require a lifetime of care to manage painful and disabling symptoms. Despite the severity of FGIMDs and the high healthcare costs associated with addressing these conditions, little is understood scientifically and treatment options are extremely limited. This leads to a situation where conditions are often misdiagnosed, mistreated, or under-reported. In addition, the lack of effective treatment options disrupts employment, educational, and social opportunities for patients, forcing some onto disability and leading to substantial lost potential for both the individual and society.

You can Take Action for Digestive Health

Support the Functional GI and Motility Disorders Research Enhancement Act (HR 2311). Take action to make a difference

Members of Congress Can Help
Congressional support is needed for the Functional Gastrointestinal and Motility Disorders Research Enhancement Act to see that this important legislation is ultimately passed into law. The Functional Gastrointestinal and Motility Disorders Research Enhancement Act of 2015 (H.R. 2311) seeks to advance our scientific understanding of FGIMDs and improve treatment options for patients by:

Implementing the research recommendations of the National Commission on Digestive Diseases, which are outlined in their recent report, Opportunities and Challenges in Digestive Disease Research: Recommendations of the National Commission on Digestive Diseases, to expand the FGIMDs research portfolio at the National Institute of Diabetes and Digestive and Kidney Diseases. These research recommendations largely focus on improving basic understanding of these conditions and their underlying mechanisms so that both diagnosis and treatment can advance.

Exploring opportunities for the National Institutes of Health (NIH) to partner with the Department of Defense and the Department of Veterans Affairs to increase research and improve patient care regarding FGIMDs that commonly impact veterans and active duty military personnel.

Expanding emerging research activities into pediatric FGIMDs through partnerships with other NIH Institutes and Centers. In addition to being painful, debilitating, and in some cases fatal, many FGIMDs emerge during childhood and persist into adulthood. Being able to accurately diagnose and treat these conditions during childhood can potentially offset a lifetime of suffering and high healthcare expenses.

Stimulating treatment development by calling on FDA to expand and advance efforts to craft guidance for industry that establishes a formal process for the review, approval, and monitoring of new drugs for the treatment of FGIMDs.
View the text of the bill here.

About IFFGD
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Nancy J. Norton, IFFGD President
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FGIMD Act (Functional Gastrointestinal and Motility Disorders Research Enhancement Act)
Congressional Testimony
FISCAL YEAR 2016
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Written Comments to FDA June 29, 2015
Oral Comments to FDA May 11, 2015
Comments to FDA July 16th, 2014
Written Comments to Noridian October 24, 2013
Testimony to FDA October 25, 2012
Testimony to FDA September 12, 2012
Testimony to FDA December 13, 2011
Testimony to FDA December 2, 2010
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Testimony to FDA June 26, 2000
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IFFGD is a voice on Capital Hill working with the digestive health community.

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