Patient Involvement

Launched in 2018, the IFFGD Patient Advisory Committee (PAC) continues to be a valuable source of information and support for the Foundation. Members contribute to the development of our programs and services by sharing their perspectives on the unmet needs of their communities, offering input on proposed IFFGD programs and initiatives, and acting as ambassadors in their communities.  A total of 17 individuals representing a diverse range of diagnoses, geographic locations and backgrounds comprise this exciting new committee.  The PAC has been essential in planning our patient and advocacy events.  

View the members of our Patient Advisory Committee