Kayla G’s Personal Story
Kayla G’s Personal Story: Life with EDS Hi! My name is Kayla Gonerway. I am 18 years old, and I have been sick since I was a baby, with minor issues doctors couldn’t explain, from shaking nonstop to having issues going to the bathroom. Until the 8th grade year, I got COVID-19 and started to […]
Ginger’s Personal Story
Ginger’s Personal Story: A parent looking for answers My 22 year old daughter has been dealing with undiagnosed stomach/digestive illness for the past 5 years. As she explains it, she feels hungry constantly despite eating regular meals and eating more food just makes her feel more sick. It is becoming debilitating and making it very […]
Kayla’s Personal Story:
Kayla’s Personal Story: ‘School, friendships, even simple things became overwhelming, and I often felt misunderstood and alone” Hi, I’m Kayla. I’m a young woman, and since I was 14, I’ve dealt with constant stomach pain. It runs in my family, but that didn’t make it any easier—especially when people didn’t take it seriously or thought […]
Kiyah’s Personal Story
Kiyah’s Personal Story: The challenge to find the right diagnosis I’ve been suffering since 2020 with severe abdominal pain. I’ve had 3 endoscopies &’ one colonscopy &’ 3 different gastroentorologist. After the first endoscopy I was told by my GI doctor that I have GERD( acid reflux) &’ was place on a PPI called omeperazole […]
Anonymous’ Personal Story
Anonymous’ Personal Story: Living with Gastroparesis Long year before getting diagnosed with gastroparesis. I have had lots of abdominal pain and lots of ER visits and hospital stays. I had countless CT scans of my abdomen which always came back normal. I was in and out of ERs and hospitals so much that I ended […]
Sabrina’s Personal Story
Sabrina’s Personal Story: “I thought I would die but I woke up” I am 52 and I’m not sure how long I have had gastroparesis. I had a very large hiatal hernia 2017 had a hernia surgery but got worse few months later. Found out my gallbladder collapsed and hernia came back so I had […]
Anonymous Personal Story
Anonymous Personal Story: “everything I eat or drink comes back up my mouth and my nose” Hi I’m 16 and I would like to share my story, I was born with a condition called Gastroschisis, meaning my organs were outside my body when I was born, growing up I had problems with my stomach they […]
Lindsey’s Personal Story
Lindsey’s Personal Story: Gastroparesis, 2 Hiatal hernias, SMA syndrome, acid reflux, etc My story involves more than just gastroparesis. So I can’t really recall the first time I had most of these symptoms because well it’s been that long. Basically my whole life I would eat like a bird. I would practically eat 2-3 bites […]
Sarah’s Personal Story
Sarah’s Personal Story: This has been my journey with my mystery illness It all started back in January of 2017. I changed my diet a bit, and decided to start eating more salads. On this particular day, within 30 of consuming the food, I was sprinting to the restroom with horrible diarrhea and burning abdominal […]
Angela’s Personal Story
Angela’s Personal Story: A Lifelong Battle with IBS and SIBO — “Be your own advocate” My symptoms started when I was around 8. Spent many nights alone on the floor in the bathroom feeling like I was going to die. I had cramps like I needed to have a BM but couldn’t go. I started […]
Becca’s Personal Story
Becca’s Personal Story: Managing Ulcerative Colitis and Facing Flare-Ups I was diagnosed with UC when I was 13. Painful Cramps , Bloody stools. Hospitalized for 13 days, received blood, lost weight. I’m 49 and still living with but went in remission meany times, for years. I haven’t seen a Dr since 22yrs old. Just a […]
Jan’s Personal Story
Jan’s Personal Story: Suffering with Chronic Constipation Have suffered with chronic constipation my whole life.. I am 68 years old. I have tried linzess which worked for about 1 year and now stopped working .. have tried montegrity and trulance and amitza… nothing!!I don’t know what else to do.. have started drinking high fiber powder […]