AILI’S PERSONAL STORY

Hello! I’m somewhat new here, but here we go.

Ever since I was 4 (I’m 16 now) I have been dealing with what I believe is IBS. Each morning, I awake feeling nauseous. This nausea usually lasts for several hours, sometimes the whole day. This is also accompanied with extreme abdominal pain and diarrhea. I often do not eat a lot, usually because I have no appetite or I am afraid of a flare up. My flare ups happen quite often and at random times, even if I haven’t eaten anything to cause one. And as for the poor appetite, I have found that I can usually go over 12 hours and not be hungry or even want to touch anything.

Now even though I have been dealing with this for over 10 years, I always assumed that it would go away. But, it just seems to be getting worse over time. I started seeing a Pediatric GI doctor a few months ago, but things are about the same. They have been trying to find a suitable medication that will help (dicyclomine, zantac, levsin, etc.), but nothing has been helping. They are still awaiting the biopsy results from my endoscopy and colonoscopy.

I am often not able to do the same things that other girls are able to do my age, and I am quite miserable with having to live like this day in and day out.

I know this was probably somewhat of a lengthy read, but I do ask one thing. Does anyone have any advice on how to cope with this?

Thanks.

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