For those living with congenital sucrase-isomaltase deficiency (CSID), access to needed medical therapies often comes at a high cost. To help alleviate some of the financial burden faced by affected individuals and their families, the HealthWell Foundation has launched a new fund that will provide up to $10,000 in copayment or premium assistance to eligible patients living with CSID.

CSID is a genetic digestive disorder that affect's a person's ability to digest certain sugars. Affected individuals cannot break down the sugars sucrose (also known as table sugar) and maltose (the sugar found in grains), and other compounds made from simple sugar molecules (carbohydrates), which can cause diarrhea, abdominal pain, and other symptoms.

Learn more about CSID

"For children and adults living with CSID, accurate diagnosis is just the first step," said IFFGD President Ceciel Rooker when asked about the fund. "Costs associated with this life-long digestive disorder pose a significant burden and can prevent individuals and families from obtaining the medical care they need. This fund from the HealthWell Foundation will help lift some of that burden and give families greater access to needed treatments."

Learn more about the fund


About the HealthWell Foundation


The HealthWell Foundation is an independent non-profit organization with the mission of reducing financial barriers to medical care for underinsured patients with chronic or life-altering diseases.

Publications Library
Reporter's Guides
Survey Corner
November 2020 #DDHChat Recap
October 2020 #DDHChat Recap
September 2020 #DDHChat Recap
December 2019 #DDHChat Recap
October 2019 #DDHChat Recap
August 2019 #DDHChat Recap
June 2019 #DDHChat Recap
April 2019 #DDHChat Recap
March 2019 #DDHChat Recap
G-POEM for Gastroparesis Twitter Chat Recap
February 2019 #DDHChat Recap
January 2019 #DDHChat Recap
Constipation Awareness Month 2018 Twitter Chat Recap
Gastroparesis & Diet Twitter Chat Recap
The HealthWell Foundation Launches Fund for CSID
Living with Gastroparesis: Everything Changes
"Teaming Up" for Gastroparesis Patients
“We Are In This Together!”: Patients Help Patients Receive Care at the University of Louisville GI Motility Clinic
"Let Your Voice Be Heard!" Gastroparesis Advocate Shares the Importance of Making Your Story Heard
CELAH Celebrates 10 Years of Service to the Latino Community
Gastroparesis Advocates Raise Their Voices for Awareness from Coast to Coast
En Español
Biofeedback, incontinencia, y la perspectiva del paciente
Cambios en el Control de los Esfínteres por el Parto
Como Hablar con tu Medico Acerca de la Incontinencia
Constipación, inercia colónica y estudios con marcadores colónicos
Diarrea Funcional
Diverticulosis y Diverticulitis
Incontinencia Fecal y la Edad
Manejo y Tratamiento Medico de la Incontinencia
¿Respondes con el intestino?
Tratamiento la Dispepsia Funcional: Cuáles son sus opciones?
Viviendo y Sobrellevando la Incontinencia
Digestive Health Matters
Medical Definitions
Other Disorders & Nonprofits
Government Institutions
Professional Nonprofits
Educational Organizations
Dietitian Listing
Books of Interest
Clinical Corner - FAQs

Stories of Hope

personal story

Daily living, stress, struggle, the need for understanding, and the search for answers. 

These are your stories.
You are not alone.

Read Personal Stories

Share Your Stories

Stories of Hope - Taking Action