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Virtual Advocacy Day: September 12th, 2017

On Tuesday, September 12th, 2017 we invite you to join us and patients, family members and friends, health care providers, and others from across the United States to take part in IFFGD's 8th Annual Advocacy Day. On this day, members of the functional gastrointestinal and motility disorders (FGIMDs) community will take a stand for all those affected by these poorly understood and often debilitating conditions by reaching out to their House Members of Congress to cosponsor The Functional Gastrointestinal and Motility Disorders Research Enhancement Act of 2017 (HR 1187). 

Working together we will carry a clear, impactful message - that research into FGIMDs needs to happen NOW! By adding your voice to a growing chorus, you can help expand critical research, initiate important legislation, and facilitate the development of new treatment options. 

On September 12th, reach out to your House Representatives and urge them to become cosponsors of HR 1187. Only through our continued advocacy can we advance this critical legislation in Congress on behalf of the digestive health community.

Together we can make a difference.

Contact Your House Member

Identify and find the contact information for your Representative by going to www.house.gov and entering your zip code in the box at the top right corner.

By Phone

  • Identify yourself as a constituent and ask to speak with the healthcare staff member for your Representative. If they are unavailable, you can leave a voicemail.
  • Ask that your Member of Congress become a cosponsor of HR 1187, The Functional Gastrointestinal and Motility Disorders Research Enhancement Act of 2017.
  • Provide a short explanation of functional GI and motility disorders. Refer to the Quick Facts below for help.
  • Briefly share your personal story of how one of these disorders has affected your life, or the life of someone you know.
  • Explain that HR 1187 will significantly improve our scientific understanding of the functional GI and motility disorders and improve diagnosis and treatment.
  • Thank the staff member for their time and attention.

Give the aide your contact information and ask to be informed about the actions of your Representative on this key issue.

By Email

  1. Fill out the provided contact form with your contact information or, if a contact form is not provided, include your mailing address in your email to identify yourself as a constituent.
  2. Follow steps 2 through 6 above.
  3. If desired, use this sample letter to help you format your letter to your Representative.

By Twitter

  1. Find your Representative's Twitter handle with this list from C-SPAN: www.twitter.com/cspan/lists/members-of-congress.
  2. Identify yourself as a constituent.
  3. Ask your Representative to cosponsor bill HR 1187.
  4. Use #HR1187 to join the conversation.

Quick Facts

  1. HR 1187 is budget-neutral, it does not require additional costs to implement.
  2. Functional gastrointestinal and motility disorders affect 1 in 4 people in the US – men, women, and children.
  3. The conditions are a serious issue for many military veterans – part of Chronic Multisymptom Illness (or Gulf War Syndrome).
  4. The conditions involve improper functioning of the nerves, muscles, and related mechanisms of the digestive tract.
  5. They are chronic and some can be life-threatening.
  6. These conditions are often misdiagnosed or mistreated.
  7. Currently, treatment options are extremely limited, not always effective, and focus on symptom management – no cures are known.

Finally, to help with tracking our progress, we'd appreciate it if you would This email address is being protected from spambots. You need JavaScript enabled to view it. to let us know that you contacted your Member of Congress in support of HR 1187, and let us know the name of your Representative. (We will keep your name and contact information confidential.) Our goal is to continue to work with policy makers to advance this critical legislation in Congress on behalf of the digestive health community.

Advocate for Change

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What it means to be an advocate – someone who speaks out and works with others to create meaningful, positive change. Let your voice be heard.

Taking Action for Digestive Health

The Functional GI and Motility Disorders Research Enhancement Act

Make Your Voice Heard