Personal Story
Gastroparesis the beginning. I believe my journey began in 1989 with the first migraine, but I didn’t realize it. The first migraine I had was a reaction to Indocin. I thought, at the time! And it may very well have been! What you also need to know? Is that I was an avid exerciser, biker, […]
Personal Story
I’ve had symptoms of IBS for over the last two years or so… just before I graduated. I didn’t think much of it at first and thought the symptoms would pass. As a student my diet wasn’t great but it wasn’t that bad either. Soon afterwards the stomach pains became a part of my everyday […]
Personal Story
Anonymous Personal Story: IBS-D I am a 67-year-old female who has suffered from digestive problems most of my life. After having acute pancreatitis at 25 caused by gallstones, my gallbladder was removed. Then came more problems. I am apparently one of the 20% of gallbladder cases left with excessive bile dumping into the intestines, causing […]
Personal Story
Catherine’s Personal Story: Severe Gastroparesis I was just diagnosed with Gastroparesis about two weeks ago, I can not hold down solid foods for long. i finally got in to see the gi doctor and he sent me to take a gastric emptying study done and it said that i have a sever case of gastroparesis. […]
Personal Story
When Alex was four days old, we noticed that his breathing was so loud that you could hear it all over the house. and that he had a sunken chest. The pediatrician assured us that he was fine. By the time he was two years old, he was diagnosed with asthma after making many trips […]
October2020 Ddhchat Twitterchat Iffgd Taomprakash Nshah Nutrition For Ileostomy The Dietitian And Patient Perspective Script
DDH Chat
Gastroparesis Advocate, Patient Education and Advocacy Specialist with the Association of Gastrointestinal Motility Disorders (AGMD), and IFFGD Patient Advisory Committee member, Melissa Adams VanHouten, talks about amplifying the voice of the gastroparesis community during Gastroparesis Awareness Month in August through a grassroots campaign to establish official proclamations in cities and states across the nation. Gastroparesis, […]
DDH Chat
For those living with congenital sucrase-isomaltase deficiency (CSID), access to needed medical therapies often comes at a high cost. To help alleviate some of the financial burden faced by affected individuals and their families, the HealthWell Foundation has launched a new fund that will provide up to $10,000 in copayment or premium assistance to eligible […]
DDH Chat
Diet & Digestive Health (DDHChat) Twitter Chat with IFFGD, Tina Aswani Omprakash, and Neha D. Shah MPH, RD, CNSC, CHES The Diet & Digestive Health (#DDHChat) Twitter chat series with the International Foundation for Gastrointestinal Disorders (IFFGD), co-host Tina Aswani Omprakash and lead host dietitian Neha D. Shah, MPH, RD, CNSC, CHES. We are excited […]
DDH Chat
Gastroparesis Advocate Shares the Importance of Finding Your Community IFFGD talks to gastroparesis advocate and IFFGD Patient Advisory Committee member, Stephanie Torres, about her journey and the importance of finding your voice and your community. For many, the journey from symptom onset to long-term symptom management is a long and winding one, taking twists and […]
Testimony
On September 12, 2017, Ceciel Rooker presented the following research information to the US Food and Drug Administration (FDA) concerning the burdens and needs of gastroparesis patients: On behalf of the International Foundation for Functional Gastrointestinal Disorders (IFFGD), we appreciate the opportunity provided by the FDA to hear the patient perspective at the Patient-Focused Drug […]
Testimony
The following written comments were submitted to the Office of Disability Policy of the Social Security Administration (SSA) by IFFGD President, Ceciel T. Rooker, in response to Docket No. SSA-2017-0042 on September 23, 2019. Thank you for your leadership at the Office of Disability Policy. The International Foundation for Gastrointestinal Disorders (IFFGD) is grateful for the […]