Personal Story
Rebecca’s Personal Story: “If it is not my right to get the medicine I need, I must change citizenship to a free country” My story begins and ends with a plea to lawmakers. Our Declaration of Independence lists our “inalienable rights” of “life, liberty and the pursuit of happiness”. I ask you to give me […]
Personal Story
Trisha’s Personal Story: My Gastroparesis Story My name is Trisha and I am sharing my personal story to give you an inside look at what it’s like living with this awful and misunderstood disease. I have had GI-related issues and numerous sporadic episodes of being unable to eat due to pain and nausea/vomiting for many […]
Personal Story
Hi everyone was I pleased to find this page as I’m at my wits end iv even starting goin to church ( which is something iv never done before but I do believe in my angels) iv suffered badly with EDS and everything that goes with it and as a child with unkind cruel parents […]
Personal Story
I was 14 when I was diagnosed with GERD. I was healthy, a varsity soccer player, a straight-A student, and I almost never missed a day of school, until GERD came into my life. I was playing in a soccer game on a hot day, when I had difficultly breathing, chest pain, and I started […]
Personal Story
Kaylee’s Personal Story: Constipation and IBS I think I was a sensitive, anxious person from the moment I was born. After my parents took me home, I slept a LOT for about a week straight before finally beginning to take in the world around me. And take it in I did—all of it, all the […]
Personal Story
Anonymous Personal Story: “I’ve learned to ignore the ignorance of people” I’m a female in my 40’s and I first developed gastrointestinal problems in 2008 after about 3 viral gastro bugs at end of 2007. I first noticed IBS-D when I used to be out exercising daily and I’d have to run back home because […]
DDH Chat
Patients Help Patients Receive Care at the University of Louisville GI Motility Clinic Gastroparesis Support Services, Inc. co-founder, Patrick Dunegan, talks about how the organization got started and reflects on what can happen when patients support patients. For many individuals with gastroparesis, obtaining a diagnosis and receiving knowledgeable care often means traveling great distances to […]
Testimony
IFFGD Vice President, William Norton, submitted the following written comments to Noridian Administrative Services in response to the decision by Noridian to deny Medicare coverage for the Solesta procedure for the treatment of fecal incontinence in adults who fail conservative therapy. On behalf of the International Foundation for Functional Gastrointestinal Disorders (IFFGD) I am writing […]
Testimony
The following written comments were submitted to the Dockets Management Staff (HFA-305) Food and Drug Administration by IFFGD President, Ceciel T. Rooker, in response to Docket No. FDA-2019-D-4247 on December 30, 2019. Thank you for your leadership at the Center for Drug Evaluation and Research in the Food and Drug Administration (FDA). The International Foundation for […]
Testimony
IFFGD Vice-President, William Norton, submitted the following written public testimony to the FDA in connection with a January 11, 2012 meeting of the Gastroenterology and Urology Devices Panel of the Medical Devices Advisory Committee to consider the premarket approval of the LINX Reflux Management System for the treatment of gastroesophageal reflux disease (GERD): On behalf […]
Testimony
IFFGD President, Ceciel Rooker, submitted the following written statement to the House and Senate Committee on Appropriations, Subcommittee on Labor, Health and Human Services, Education, and Related Agencies regarding Fiscal Year (FY) 2020 appropriations for medical research and public health programs. April 9, 2019 STATEMENT OF CECIEL T. ROOKER PRESIDENT INTERNATIONAL FOUNDATION FOR […]