HIRSCHSPRUNG'S DISEASE

PATRICK'S PERSONAL STORY

September 13, 2017 Fecal Incontinence, Hirschsprung's Disease, Irritable Bowel Syndrome

I've had a severe constipation since age 14,was diagnosed with mega colon ,had BMS only every 4 to 5 days.


Had to get embarrassing weekly enemas from my mom till age 22.the enemas helped me a lot,but made me Dependant on them for life.


Any advice how to get off weekly enemas ?


 

GABRIEL'S PERSONAL STORY

February 15, 2016 Hirschsprung's Disease, Pediatric FGIMDs

My nephew, Gabriel, who is now 6 years old, was diagnosed with Hirschprung’s disease  when he was born. Only three days after he was born doctors had to perform an emergency descending colostomy because of the magnitude of his obstruction. Everything went wrong from there. We live in Col