Rare Disease Day is an international advocacy day to bring widespread recognition of rare diseases as a global health challenge. The day is celebrated on the last day of February every year.

About Rare Diseases

The National Institutes of Health Office of Rare Diseases Research (ORDR) maintains a list of rare (orphan) diseases, which are generally considered to have a prevalence of fewer than 200,000 affected individuals in the United States. Listed rare diseases affecting the functional GI and motility disorders community include:


Working with Doctor

patient doctor

Successful relationships with healthcare providers are an important part of managing life with a long-term digestive disorder.

Doctor - Patient Communication

How to help your doctor to help you

How to Talk to Your Doctor